Ella is so sweet! I love the noises she makes and the way she smells...I cannot wait for everyone to meet her!
Her blood pressure has remained high. It is fluctuating-which is a good thing. It is not quite as high as it was, but they are still keeping an eye on her and have consulted a doctor at Children's Mercy. I will talk with the doctor later this morning to hear what he/she suggests. Her urine, blood and abdominal x-ray all seemed normal.
She definitely has reflux. She has this "retched" cough at times. I can tell she hurts. Her bed is elevated and the medicine has kicked-in and it is working. They are continuing to do another test today called a swallow study. They want to make sure she is not aspirating when she is eating. So they will take her down for a x-ray and feed her during the x-ray to see the path the milk follows. Then they will thicken the milk, and see if it helps her eat without coughing...
Daddy fed Ella her first bottle on Sunday, with the help of the Amazing Nurse, Kim. Kim is so knowledgeable and is another one of the nurses that help make this road more enjoyable. She is great!! She is feeding her in the picture above.
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