Sunday, January 31, 2010
She is eating again. So glad! She is up to 2 pounds 11 ounces. All the grandparents have seen her this weekend and they all agree that she is filling out more and you can tell she has gained a little.
She had another blood transfusion today due to her blood gas levels being low. She tolerated it well and her coloring was better when we saw her today.
They are treating her as if she has an infection, although it is not a positive from the lab yet. She acts as though she is not feeling well, so they are going to keep her on the antibiotic to stay on the safe side. They also pulled her PIC line yesterday, because bacteria will stick to any foreign object so they pulled it to make sure it is not the source of the infection.
I look forward to holding her in my arms in the morning.
Thanks for the prayers!
Saturday, January 30, 2010
Her sugars are high and they have reduced the amount of sugar that is going into her fluids. Her sugars will continue to be checked regularly throughout the day. Labs are ordered for the morning to check her gases to see if there is a concern for infection.
Her afternoon is going better with no alarms going off since we were there. She is resting comfortably. Good news for now!
Friday, January 29, 2010
(Please read BOTH posts from today--this is the 2nd/later of the two)
The Doctor called this evening and said that Ella was having trouble taking deep breaths, and she was concerned and going to make some changes. She was going to put Ella back on C-Pap (which Ella is going to hate because she is not able to move very much while on the C-Pap apparatus). They are also going to give her a blood transfusion because they know her blood gases are going to fall from being switched back to C-Pap.
They are going to hold one of her feedings, because she will be under a lot of "stress" using the C-Pap again...
I just spoke to the nurse and she said Miss Ella is resting, the blood transfusion is going well and that she is comfortable and sleeping right now on the C-Papa. I will call again before I go to bed for another update.
Please pray that things turn around and we head in the positive direction again, soon!
(Read BOTH posts from today)
Ella has had a good week, taking little steps in the positive direction.
Her bilirubin level has gone down, so she was able to go off the jaundice light on Tuesday. Yea, Ella! She has also been weaned off of C Pap and is currently on nasal cannula only. Wednesday was her first day on full nasal cannula and she did great. She continues to have monitors go off, telling us she is not taking deep breaths, so we verbally remind her to take deep breaths. She listens to her mommy and daddy and the monitors stop. She also continues to have the occasional “B” episodes and resolves them on her own.
They have determined that her tummy is not able to digest the amount of sugar in breast milk, so she is currently on a pre-digested formula. This will be used for a few days until her stomach is working better and able to fully digest food on her own.
The NICU staff also moved her feeding tube from her mouth to her nose, so that her mouth is free. So this week we have been able to see her without her jaundice protection glasses and without her feeding tube in her mouth! We can actually see her face and she looks so much like Carter.
Carter is adjusting well…we have taken two steps back on potty training(forward steps now), he has not been eating well, he is very clingy to us….all we hear is normal and he is just adjusting. He always said Ella was going to, “ROCK HIS WORLD!”
I have loved spending so much time with her and holding her. Ella is such as sweet baby.
Sunday, January 24, 2010
Carter was tired by the end, and fell asleep in the car.
The pictures above are of the big brother and little sister, Daddy and Carter in Ella's room, Mommy holding her with Carter and Ella's board in her NICU room. We have decorated her board with a family picture and a picture of Carter. Today the March of Dimes staff had a family activity making valentines. The pink heart is the one Carter made for Ella....with mommy and daddy's help.
Ella has had a great day. She is up to 5 cc's on her food, and it is increasing every 12 hours. She is also able to be on the nasal cannula 6 hours a day! I am so glad because we can tell she is much more comfortable on it, rather than the C Pap.
Saturday, January 23, 2010
She was able to be put on Nasal Cannula for 3 hours today and did great! I think she loved being off the C Pap- she is able to move so much more on nasal cannula. They will continue to do it for 3 hours every shift (12 hour period) and slowly increase the time she is able to be on it.
Her blood gases were good and she is eating well! Thanks be to GOD!!
Thanks for the thoughts and prayers!
Friday, January 22, 2010
Wednesday, January 20, 2010
Our neighbors and the HTS staff have been bringing in meals-which has been such a help, as well!! We really appreciate it! It is so nice not to have to think about cooking....such a blessing!!
Ella is doing well today. Her feedings are better, but she is still getting used to them.
She is also having a little trouble on the C Pap (breathing) and some slight modifications have been made, but nothing major. So today, we are praying for her nutrition and breathing concerns to improve, and thanksgiving for GOD's blessings....and that we all start feeling "normal" again soon.
Tuesday, January 19, 2010
Saturday, January 16, 2010
Someone asked me how exactly they did the surgery. They actually did the PDA surgery right in her NICU room and the PDA team, surgeon and his assistant, anesthesiologist, and others all came to her. They said that is a "blood-less" surgery. They made an incision on her left side up by her heart. They actual move two of her ribs up out of the way (her ribs are very flexible right now )and go in through that space to perform the surgery. The surgeons part took only about 10 minutes. There are NICU nurses on the PDA team that are trained just for this type of surgery. She has had one on one care since her surgery and her (Ella's) roommate will hopefully be moved back into her room tomorrow.
Thanks for your prayers. We can feel them!! We hope for more good posts in the days head...
Friday, January 15, 2010
Thursday, January 14, 2010
Thanks for the prayers.
Wednesday, January 13, 2010
I tried to get up yesterday morning, get cleaned up and head to the hospital. I got cleaned up, and then became exhausted and had to go back to bed. I was happy to see Ella in the evening with Ryan. I think I need to rest, knowing Ella is in good hands and God is watching over her.
Monday, January 11, 2010
*She is sucking on a pacifier. If you remember, Carter went to the NICU at 36 weeks because he could not suck to eat/use a pacifier.
*She has only been using a nasal cannula for her oxygen since her first day of life. At one point, she was using less oxygen than her mommy! She is now on 2 Liters of oxygen at 21% (room air).
*She did have a blood transfusion this morning 1-11-10 which is a common thing. They said it will probably not be her only one. The transfusion helped stabalize her blood gases and oxygen carrying capacity. She recieved about 1 Tablespoon on blood.
*She does have a heart murmur ( Patent Ductus Arteriosus ) and is on day 3 of the medicine to treat it. She will have another Eco Cardiogram on it tomorrow to see if it closed. This again is very common. We are hopeful the medicine will take care of it and she will not need another round of medication/surgery.
*She is experiencing Bradycardia (apnea). This is when she is holding her breathe and her heart rate dips. She is forgetting to breathe. However, it is positive that these episodes are fast and she is correcting on her own. She has not needed any stimulation to correct it. She had a total of 7/8 yesterday and had only 1 this morning as of 11am.
*SHE IS A BEAUTIFUL RED HEAD!!!
We know we are on a roller coaster and we will have positives/negatives along the way. I am so happy with the wonderful care she is receiving and the AMAZING staff in the NICU!!
I am being discharged tonight. It will be sad, but I know she is in good hands and God is with her. I am doing well, but really tired and sore.
Sunday, January 10, 2010
Tuesday ( December 29th) Megan began experiencing pain that was determined to be caused by an acute physical issue related to her pregnancy, which required what should have been a short surgery to correct the problem. (Not a problem with the baby, but one with her which was affecting the baby.) The surgery took much longer than usual—about 2 ½ hours, which started a snowball effect of difficulties for Megan health-wise (pre-term labor, pneumonia, kidney failure and more). All of this is what landed Megan in ICU at St. Luke’s on the Plaza. (She’s at 26 weeks and they want to hold the baby until at least 28 weeks.)
Let's keep pouring out prayers for her and Ella Brooke (which is what they will name this baby)!
P.S. Megan just called. She’s out of ICU, but very weak and worn out. Not ready for calls, and no visits, PLEASE. She’ll let us know. I told her I’ll check in with whoever is at her house tomorrow for an update